Judy Schneider of Wallingford had volunteered 25 years of her life in schools and elsewhere, booking venues, marshalling volunteers, tapping sponsors, being both spark and glue.
Last summer, her 3-year-old grandson — mild for his age, Lego-savvy, sandy-blonde Aiden — was diagnosed with Duchenne’s Muscular Dystrophy. Judy found that DMD is the most common 100 percent fatal genetic disorder in the world, affecting nearly 20,000 in the U.S. alone. She got active. ...